We were so blessed to get a phone call from Steven yesterday. He is now only 4 time zones away from us. It still seems like the other side of the world though.
He only had 15 minutes and there was a long line behind him. Dad, myself, Kati, Dani, Isaac, and Chantal all got a chance to say hello before he had to go. The temperature where he was yesterday was 137 degrees. Hard to believe how anyone can live in those temps. He sounded in good spirits. He misses his wife, Dany which is understandable.
Lizzy is doing better. Since she is no longer dehydrated, she seems almost like a different baby. Her face actually appears plumper, she has more energy, she is less fussy, and she has more of an appetite. In the short time we have had her, she has gone from a little froggy type of scoot across the floor to up-on-all-fours for an out and out crawl. Life is going to be busy from this point on. Our house is NOT baby proof and she is showing us that every day.
Her second round of antibiotics is finished but her lungs are still full. The doctor is not immediately doing a third round because she is quite sure that Lizzy has Cystic Fibrosis and will always be somewhat congested in her lungs. I had a retired medical professional come over on Tuesday night and she showed me how to do chest percussion therapy to break up the mucus. We have to do this 3 times a day and it is a nosy time of day because Lizzy screams to high heaven while we are doing it. She hates it! But the doctor assured me that the full blown war cry that Lizzy puts on is good for her too. We may possibly lose a bit of our hearing but as long as it helps her, we are doing it.
The care of Lizzy has to be watched very carefully. She must have a good, clean environment and over at BH there are so many children eager to hold and touch her and that is not what she needs. So she is living at the Center with our family. We aren’t equipped for a baby or at least we weren’t…but we have been very blessed. Her diet must be closely monitored as well. And of course, there is the 3X a day percussion therapy and her medicines that she must have 3 times a day.
A visiting medical team happily carried over for us a pack n play. So we have a bed for her. Another ministry upon hearing of her arrival went through their supply of children’s clothes and found a few things. We couldn’t keep anything she arrived in because she was covered from head to toe with scabies. The donated clothes combined with our small amount we had on hand from Grandma Marthalee and so she has a basic wardrobe. We went out and found a junior chair of sorts to use as a high chair and we have had word that another family is sending us a car seat for her to use while in the van.
We also want to thank Heather in Malaysia for her gift that covered her initial blood work and lab tests. Please be in prayer that we can find some way to do the actual diagnostic test for CF. We are hoping to be able to do it here and then have it couried over to Thailand or Vietnam so we can be positive of what we are dealing with.
We are in the process of apply for her passport. The estimated cost of Lizzy’s passport so she would be free to travel to other countries in either an emergency or for testing/medical care is going to be around $300.
School is doing very well. Most of the Bykota Kids are in their fourth book now. Dany, Bee, and Visoth need some special attention. Our system is working WONDERFULLY with the other 10 students but these 3 that need special attention is one area that we aren’t doing well with. So your prayers for us to have wisdom in how to proceed would be appreciated.
I must go now and get on with the day’s activities. On top of everything that normally happens, we are preparing for a trip out to a provincial orphanage tomorrow where we will paint tee shirts with the children. This will be one of those things that either will turn out to be a WONDERFUL memory and lots of fun or it will be one of those “What were we thinking????” moments.
Breathing in, breathing out,
Rhonda